制定一个核心成果集,以评估高收入国家新生儿死亡后的干预措施和照顾父母 (iCHOOSE新生儿研究):混合方法研究协议
Anna Davies1, Charlotte Williams2,3, Christy Burden2,3
1Academic Women's Health Unit, Translational Health Sciences, University of Bristol, Bristol, UK Anna.davies@bristol.ac.uk.
制定一个核心成果集 (COS),以标准化对新生儿死亡后父母的支持的评估. 这将有助于确定有效的干预措施,并改善对丧亲家庭的照顾.
科学领域:
- 围产期健康研究
- 临床试验方法论 临床试验方法论
- 患者为中心的研究结果研究.
背景情况:
- 新生儿死亡严重影响父母的心理健康,财务状况和人际关系.
- 越来越需要基于证据的干预措施来支持悲伤的父母.
- 核心成果集 (COSs) 对于标准化研究成果评估至关重要.
研究的目的:
- 为评估高收入国家新生儿死亡后对父母的干预和护理制定一个核心成果集 (COS).
- 为了促进未来的证据综合,并确定有效的支持策略.
- 确保在研究中进行一致和有意义的结果测量.
主要方法:
- 一个六个阶段的方法,涉及到一个家长参与小组和指导委员会.
- 量化研究的系统审查,与悲伤的父母进行的定性访谈,以及利益相关者的大声采访.
- 国际德尔菲调查和共识会议,就最终结果和测量工具达成一致.
主要成果:
- 该研究概述了用于COS开发的综合方法.
- 利益相关者的意见在整个过程中被整合在一起,以确保相关性和适用性.
- 获得了道德认可,并制定了传播计划.
结论:
- 开发的COS将在新生儿死亡研究中标准化结果评估.
- 这将使强有力的证据综合成为可能,并为开发有效的家长支持干预提供信息.
- 该研究强调了患者和利益相关者参与研究的重要性.
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