为患有子宫内膜异位症的妇女提供信息支持:范围审查
Deniz Senyel1, James H Boyd2, Melissa Graham2
1Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia. d.senyel@latrobe.edu.au.
BMC women's health
|February 3, 2025
概括
患有子宫内膜异位症的女性需要更多关于她们寻求信息的行为和特定需求的研究. 开发量身定制的资源对于改善这种慢性病的护理和日常管理至关重要.
科学领域:
- 生殖健康 生殖健康
- 慢性疾病管理 慢性疾病管理
- 卫生信息科学 信息科学
背景情况:
- 子宫内膜异位症影响10%的生育年龄妇女,引起疼痛和影响福祉.
- 缺乏治愈和有限的治疗疗效需要准确的患者信息.
- 本综述绘制了有关子宫内膜异位症信息需求,寻找行为和可用资源的文献.
研究的目的:
- 识别和综合当前关于女性关于子宫内膜异位症的信息需求的文献.
- 探索女性与子宫内膜异位症相关的信息搜索行为.
- 评估现有的子宫内膜异位症信息资源的格式和范围.
主要方法:
- 根据JBI方法和PRISMA-ScR指南进行范围审查.
- 在Medline,Cinahl,Embase,Scopus和Web of Science数据库中进行全面搜索 (2024年8月).
- 包括关于子宫内膜异位症信息资源,寻找行为和需求的研究.
主要成果:
- 包括25项研究,主要关注网上信息资源,如网页和社交媒体.
- 关于寻求信息的行为和特定需求的研究有限,尽管患者对各种主题的兴趣很高.
- 互联网是访问子宫内膜异位症信息的主要来源.
结论:
- 对寻求信息的行为和需求进行系统分析对于未来的子宫内膜异位症研究至关重要.
- 开发定制的信息资源对于满足子宫内膜异位症妇女的多样化需求至关重要.
- 增强的信息资源可以赋予妇女管理她们的健康和导航医疗保健的权力.
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