经过肺移植的囊性纤维化患者的生活经历:一种定性研究
Ulrika Skogeland1, Isabelle de Monestrol2, Terezia Pincikova2
1Department of Pediatrics, Cystic Fibrosis Centre, CLINTEC, Karolinska Institutet, Karolinska University Hospital, Stockholm, Hälsovägen, Stockholm, 141 86, Sweden. ulrika.skogeland@ki.se.
BMC nursing
|February 3, 2025
概括
对囊性纤维化 (CF) 的肺移植涉及到重大的身体和情绪挑战. 患者需要更好的准备,沟通和支持,在整个移植前和移植后的旅程.
科学领域:
- 医学研究 医学研究
- 移植手术 移植手术 移植手术
- 肺部病理学 肺部病理学
背景情况:
- 囊性纤维化 (CF) 影响呼吸系统,往往需要进行肺移植.
- 肺移植是一项拯救生命的手术,具有固有的挑战.
- 现有关于移植后需求的研究缺乏关注CF患者在移植前和移植后的独特经历.
研究的目的:
- 探索接受肺移植的囊性纤维化患者的移植前和移植后经历.
- 确定这些患者面临的身体和心理挑战.
- 了解患者报告的改善护理需求.
主要方法:
- 探索性定性研究. 探索性定性研究.
- 这项研究涉及23名肺移植的囊性纤维化患者.
- 通过半结构面试收集的数据,并使用诱导性内容分析进行分析.
主要成果:
- 患者经历了身体 (疲劳,疼痛) 和精神 (抑郁,焦虑) 的挑战.
- 等待期导致了孤立,依赖和内.
- 移植后,患者报告了缓解,疼痛和身份调整,强调坚持复杂的免疫抑制疗法和副作用.
- 需要与医疗保健专业人员进行更早,更开放的对话,以及更好地为移植,疼痛,抑郁和焦虑做好情感准备.
结论:
- 肺移植为CF患者带来了相当大的身体和情感挑战.
- 综合,以人为中心的护理至关重要.
- 建议提供心理支持,有效的疼痛管理和早期的息治疗.
- 护士对于沟通,疼痛管理,免疫抑制剂教育和倡导整体护理至关重要.
相关概念视频
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Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
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Cystic fibrosis (CF), an autosomal recessive disorder, significantly affects the function of exocrine glands. This genetically inherited disease is characterized by the production of thick and sticky mucus, which can severely affect various organs and systems in the body.
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation,...
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation,...
182