为95岁及以上的成年人设计数字研究平台的定制方法:超级老人家庭研究
Sofiya Milman1, Aisha Montgomery2, Nir Barzilai1
1Department of Medicine and Department of Genetics, Institute for Aging Research, Albert Einstein College of Medicine, Bronx, New York, USA.
概括
超级老年人研究成功地使用了一个数字平台来远程收集95岁以上的成年人和他们的家人的数据. 这表明了数字健康研究在老年人群中的可行性.
科学领域:
- 老年学是一门学科.
- 数字健康数字健康
- 生物医学研究生物医学研究
背景情况:
- 超级老人家庭研究研究了95岁及以上的个体的健康衰老机制.
- 试行了一项远程研究设计,以评估在这种罕见的老年人群中使用数字技术进行研究的可能性.
- 这项研究的重点是设计一个数字平台的同意,入学和数据收集.
研究的目的:
- 测试远程,数字化研究设计的可行性,以研究健康衰老.
- 评估针对老年人定制的数字平台的可用性和有效性.
- 收集非老年人,百岁老人及其家属的表型和遗传数据.
主要方法:
- 95岁以上的参与者 (超级老人),他们的后代和后代的配偶通过媒体和社区外展进行了招募.
- 一个基于网络的研究应用程序促进了远程注册,eConsent,数据提交和生物样本收集.
- 该平台的设计和功能专门针对老年用户进行了调整,对可用性和数据输入进行了定性评估.
主要成果:
- 初步数据包括160名超级老人 (平均年龄98岁) 和127名后代/配偶 (平均年龄69岁).
- 在这两组中,大约97%的参与者成功地使用了平台进行资格选,eConsent和调查.
- 高完成率表明成功参与数字研究工具.
结论:
- 超级老年人参与者及其家人有效地使用了电子同意和数据提交的数字平台.
- 量身定制的设计元素提高了可用性,减少了错误,支持在老龄化人口中数字化交付研究的可行性.
- 研究结果可以为与老年人进行数字健康研究的最佳实践提供信息.
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