影响治疗满意度的因素和医生与系统性硬化症患者之间的认识差距
Yoshihito Shima1, Mona Uchida-Yamada2, Sei-Ichiro Motegi3
1Laboratory of Thermo-Therapeutics for Vascular Dysfunction, Osaka University Graduate School of Medicine, Osaka, Japan.
Rheumatology and therapy
|February 5, 2025
概括
患者和医生对系统性硬化症 (SSc) 症状和治疗有效性的看法有很大的不同. 提高患者满意度需要调整治疗目标和患者与医生之间的沟通.
科学领域:
- 类风湿病学 类风湿病学
- 皮肤病学 皮肤病学
- 患者报告的结果
背景情况:
- 系统性硬化症 (SSc) 在患者和医生的理解中提出了独特的挑战.
- 感知中的差异可能会影响治疗满意度和坚持.
研究的目的:
- 调查和比较患者和医生对SSc症状的看法.
- 确定影响患者对SSc治疗满意度的因素.
- 为了探索患者和医生之间感知治疗疗效的差异.
主要方法:
- 一项基于网络的调查于2023年3月在日本进行.
- 包括18岁以上的SSc患者和20个以上床位的医院的医生.
- 患者和医生回答了有关症状和治疗的类似问题.
主要成果:
- 在对不适,反流食道炎,消化不良,便秘,腹和疼痛等症状的感知中发现了显著的差异.
- 报告满意度较高的患者是那些认为治疗反应良好,年龄在50岁以上,抗毒素酶I抗体阳性,并有特定症状问题的人.
- 医生通常比患者更有利地感知症状和治疗效果.
结论:
- 患者和医生对SSc症状和治疗结果的看法不同.
- 患者对症状改善的感知是治疗满意度的关键驱动因素.
- 加强沟通和共同设定目标对于提高SSc管理中的治疗满意度至关重要.
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