基于患者报告的数据创建文本小贴士,以更好地了解患者的观点:设计研究
Sofia Charlotte Kelly1, Emilie Kauffeldt Wegener1, Lars Kayser1
1Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
JMIR human factors
|February 5, 2025
概括
来自患者报告的结果 (PRO) 数据的文本 vignettes 增强了患者和临床医生的理解. 这种新的方法将复杂的PRO数据转化为可访问的叙述,改善医疗保健沟通和个性化.
科学领域:
- 医疗信息学 医疗信息学
- 患者报告的结果
- 卫生识字 卫生识字
背景情况:
- 患者报告结果 (PRO) 数据对于个性化医疗保健至关重要,但面临解释挑战.
- 现有的PRO数据格式对于患者和临床医生来说可能很难完全理解.
- 文本插图提供了一种新的方法,可以更容易地表示PRO数据.
研究的目的:
- 使用健康技术准备和启用指数 (READHY) 工具开发基于数据的文本短片.
- 评估这些文本短片对于患者和临床医生来说的可理解性和相关性.
- 探索文本小插图作为PRO数据的替代表示.
主要方法:
- 从参与者对READHY仪器 (测量健康素养,教育,电子健康素养) 的回应中创建了文本片段.
- 从13个单独的文本字符串中开发了 vignettes,这些字符串代表 READY 尺度.
- 患者和临床医生进行了代认知访谈和评估.
主要成果:
- 患者和临床医生都发现文本短片是可以理解和相关的.
- 患者确认的小幅图准确地反映了他们的PRO反应.
- 临床医生认为,小贴士与他们对患者体验的理解保持一致.
结论:
- 从PRO仪器可以有效地开发文本 vignettes,将数字数据转换为可理解的文本.
- 语言和布局的定制,以及临床医生的培训,对于最佳的解释是必要的.
- 需要进一步的研究来扩大这项研究,并增强使用替代风格的临床相关性.
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