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制定质量改进框架,以增强1型糖尿病患者的医疗系统用户体验:重塑T1D研究
Jamie Boisvenue1,2,3, Youssef A Elezzabi4,5, Kim Young6
1Department of Medicine, Faculty of Medicine & Dentistry, College of Health Sciences, University of Alberta, Edmonton, Alberta, Canada.
概括
患有1型糖尿病 (T1D) 的人需要集中资源,灵活的护理和改进的心理健康支持. 以患者为中心的医疗保健改进对于公平和可访问的T1D管理至关重要.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者体验 患者体验
- 糖尿病管理 糖尿病管理
背景情况:
- 用户体验设计原则提高产品和服务的可访问性,可用性和享受性.
- 在Reshape T1D研究中,应用了这些原则,以了解1型糖尿病 (T1D) 护理中的患者-提供者相互作用.
- 目标是为T1D医疗保健提供临床质量改善倡议的信息.
研究的目的:
- 探索与医疗保健系统互动的T1D成年人的生活经验.
- 根据患者和临床医生的观点,确定改善T1D临床质量的关键领域.
- 为发展更公平,更容易获得,更以患者为中心的T1D护理提供信息.
主要方法:
- 基于社区的参与式研究设计,涉及患者和临床医生作为共同研究人员.
- 使用问卷和虚拟半结构面试对41名患有T1D的成年人进行混合方法方法.
- 对转录的采访数据进行主题分析,以确定反复出现的主题和模式.
主要成果:
- 患者希望有一个集中的中心,提供一致的T1D教育和资源,包括可访问的心理健康支持.
- 灵活的预约选项 (面对面/虚拟) 和下班后的访问改善了自我管理,减少了急诊室的访问.
- 参与者强调了医疗创伤的影响,讨论生殖健康的挑战,以及在线同行支持社区的价值.
- 障碍包括公共资助计划中的先进糖尿病技术的成本和获取.
结论:
- 患者和临床医生的见解对于创造更公平,更容易获得和更富同情心的T1D医疗保健至关重要.
- 从研究结果中,为改善临床质量提出了可行的建议.
- 为了有效地实施T1D护理改进,需要更多涉及医疗保健管理人员的研究.
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