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相关概念视频

Ethics in Research01:56

Ethics in Research

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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Surveys02:16

Surveys

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Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
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Longitudinal Research02:20

Longitudinal Research

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Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
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Archival Research01:40

Archival Research

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Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
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Randomized Experiments01:13

Randomized Experiments

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The randomization process involves assigning study participants randomly to experimental or control groups based on their probability of being equally assigned. Randomization is meant to eliminate selection bias and balance known and unknown confounding factors so that the control group is similar to the treatment group as much as possible. A computer program and a random number generator can be used to assign participants to groups in a way that minimizes bias.
Simple randomization
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使用技术来增加覆盖范围和优化对大规模研究计划的同意体验.

Emma Coen1, Daniel P Judge2, Samantha Norman3

  • 1Department of Public Health Sciences, Medical University of South Carolina, Charleston, SC, USA.

Journal of clinical and translational science
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概括

使用增强同意 (EC) 方法改进研究同意过程在参与者决策,知识或满意度方面与标准同意 (SC) 没有显著差异. 这两种方法都确保了参与者对基因组查计划的强有力的理解和满意度.

关键词:
同意 同意 同意 同意增强的同意得到了加强的同意.大规模的研究项目,大规模的研究项目.人口查人口查招聘工作 招聘工作 招聘工作

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科学领域:

  • 基因组医学是基因组医学.
  • 生物伦理学生物伦理学
  • 在知情同意的情况下同意.

背景情况:

  • 研究研究的知情同意过程可能对参与者来说是复杂和繁重的.
  • 提高参与者对同意的理解和满意度对于伦理研究行为至关重要.
  • 基于人口的基因组查计划需要高效和有效的同意程序.

研究的目的:

  • 为了提高参与者同意的经验在我们的DNA中SC计划,一个基于人口的基因组查倡议.
  • 评估与标准同意 (SC) 相比,增强同意 (EC) 程序对参与者决策,研究知识和满意度的影响.
  • 评估参与者的偏好,并确定未来同意改进的领域.

主要方法:

  • 一项实用性研究比较了两种同意程序:使用PDF文档的标准同意 (SC) 和使用图形图和真假问题进行增强同意 (EC).
  • 从SC组的109名参与者和EC组的96名参与者收集的数据.
  • 评估决策控制,学习知识,满意度和同意时间.

主要成果:

  • 标准同意和增强同意程序都导致了强有力的决策控制和高水平的参与者知识和满意度.
  • 在关键结果中,在SC和EC组之间没有观察到统计学上显著的差异.
  • 增强的同意体验要求参与者需要更长的完成时间.

结论:

  • 虽然增强同意方法没有比标准同意取得统计学上显著的改善,但这两种方法都有效地支持参与者的理解和满意度.
  • 需要进一步的研究来探索参与者接受同意信息的偏好,包括视频等多媒体格式.
  • 未来的同意程序代应该考虑结合不同的模式和语言选项,例如西班牙语版本.