什么是健康数据?
Claus Rehfeld1, Melanie E Kreye1, Helena Goldstein Wendelboe2
1Technical University of Denmark - DTU.
Communication & medicine
|February 7, 2025
概括
为了有效的政策和道德使用,需要明确对健康数据的定义. 这项研究以实证方式描述了健康数据,区分了来源和使用,并包括临床,人口和结构数据,以提供功能性,跨学科的定义.
科学领域:
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
- 数据治理数据治理
背景情况:
- "健康数据"一词缺乏明确,一致的定义,阻碍了有效的立法,伦理讨论和解决方案开发.
- 对健康数据的模糊理解导致使用不一致,阻止其社会价值的实现.
研究的目的:
- 经验性地描述健康数据,以促进更严格,更知情的讨论.
- 探索健康数据的特征,以支持制定跨学科的功能定义.
主要方法:
- 与30名参与健康和数据的丹麦利益相关者进行了定性访谈.
- 该研究通过利益相关者的视角探索了健康数据的特征.
主要成果:
- 卫生数据的功能定义需要区分数据的来源及其应用.
- 该定义必须包括临床数据 (患者层面),人口健康数据 (状态和行为) 和结构数据 (卫生系统,社会和环境因素).
结论:
- 对健康数据的经验衍生,跨学科的定义对于一致和有效的利用至关重要.
- 承认健康数据的多面性 (来源,使用,临床,人口,结构) 是释放其全部社会潜力的关键.
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