"我需要每个人都明白他是一个完整的孩子":一项混合方法研究,探讨护理人员与患有医疗复杂性的孩子的经历
Emily J Jensen1, Sarah N Douglas1, Sarah Khan2
1Human Development and Family Studies, Michigan State University, 552 W. Circle Dr., East Lansing, MI 48824, USA.
患有医疗复杂症 (CMC) 的儿童的护理人员在获得医疗保健和日常护理方面面临重大挑战. 这项研究强调了他们的经验,并建议改善CMC的更好的支持系统和医疗护理.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 护理人员-儿童健康动态
- 医学复杂性研究研究
背景情况:
- 患有医疗复杂性 (CMC) 的儿童需要经常的医疗护理和大量的护理人员支持.
- 关于CMC护理人员的整体医疗护理经验的研究有限.
- 了解这些经历对于改善儿童和照顾者的护理至关重要.
研究的目的:
- 了解CMC护理人员的经验和挑战.
- 为了探索COVID-19对这一群体的影响.
- 收集护理人员关于改善CMC医疗护理的建议.
主要方法:
- 解释性顺序混合方法研究.
- 通过调查收集的定量数据 (n=149).
- 通过深入访谈 (n=26) 与调查参与者的子集收集的定性数据.
- 使用描述性/推断统计和主题/内容分析分析的数据.
主要成果:
- 经常需要医疗护理和专家访问.
- 照顾CMC的情感和苛刻的性质.
- 患儿医学创伤和压力的风险.
- 由于COVID-19所带来的独特挑战.
- 在医疗保险中遇到困难.
- 提供者和系统质量对护理体验的影响.
- 个人护理的挑战,应对策略和宣传工作.
- 护理人员确定了改善护理的建议.
结论:
- 调查结果表明,需要加强实践和政策,以支持CMC及其家人.
- 医疗保健专业人员可以从护理人员的经验中学习,以改善护理服务.
- 有机会更好地将护理人员的观点纳入儿科医疗保健.
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