概括
利益相关者一致认为,患者参与临床伦理支持服务 (CESS) 是很重要的. 然而,实践有所不同,美国模型倾向于直接参与,英国模型使用间接方法.
科学领域:
- 医学伦理 医学伦理
- 医疗保健决策 - - 医疗保健决策
- 患者倡导 患者倡导
背景情况:
- 临床伦理支持服务 (CESS) 解决了医疗保健中的伦理冲突.
- 患者参与CESS流程缺乏统一的指导方针.
- 医疗保健中的紧急决策提出了独特的伦理挑战.
研究的目的:
- 探索利益相关者对CESS和紧急决策的看法.
- 了解CESS中患者参与的观点.
- 为了比较英格兰和美国的CESS模型关于患者参与.
主要方法:
- 有关医生和CESS成员的重点小组的定性研究.
- 从英国和美国招募的参与者.
- 使用反射主题分析分析的数据.
主要成果:
- 所有利益相关者都认识到患者代表在CESS中的重要性.
- 美国CESS成员直接涉及家庭,而英国CESS成员更喜欢间接的方法 (例如,书面陈述).
- 英格兰的医生和CESS成员认为患者的直接存在是开放讨论的障碍.
结论:
- 美国临床伦理学家模型似乎比英国临床伦理委员会模型更容易促进患者的直接参与.
- 在CESS模型中的差异影响了患者参与的方法.
- 由于该研究的样本规模较小,需要进一步研究.
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