超越IBD的生活:患者与EIM的经验以及多学科护理的案例
1Crohn's & Colitis Foundation, New York, NY, USA.
Crohn's & colitis 360
|February 12, 2025
概括
炎症性肠病 (IBD) 的管理需要解决肠外表现 (EIM) 和它们对患者的重大负担. 多学科的方法对于改善IBD患者的旅程至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 内部医学 内部医学
- 临床研究 临床研究
背景情况:
- 炎症性肠病 (IBD) 经常表现为肠外表现 (EIM).
- 电子医疗引擎显著影响患者的生活质量和疾病管理.
- 目前的IBD护理模式可能无法完全整合EIM评估和治疗.
研究的目的:
- 探索IBD和EIM之间的复杂联系.
- 强调对IBD患者提供全面EIM护理的必要性.
- 倡导一种增强的,多学科的IBD管理方法.
主要方法:
- 这是一篇社论,而不是一篇研究报告.
- 它综合了当前对IBD-EIM关系的理解.
- 它回顾了与EIM相关的临床和患者报告的挑战.
主要成果:
- 对于IBD患者来说,EIM是相当大的身体和情感负担.
- 临床医生需要提高对EIM管理的认识和工具.
- 统一的,以患者为中心的方法对于最佳的结果至关重要.
结论:
- 将EIM护理纳入标准IBD实践是必不可少的.
- 多学科的团队方法可以改变IBD患者的体验.
- 促进临床医生和患者之间的伙伴关系增强了支持和希望.
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