选择词语来限制耻辱:在出生缺陷中使用人第一语言的研究研究
Jacqueline T Bascom1, A J Agopian1
1Department of Epidemiology, Human Genetics, and Environmental Sciences, UTHealth School of Public Health, Houston, Texas, USA.
Birth defects research
|February 12, 2025
概括
关于出生缺陷的科学写作可以延续耻辱. 这项研究发现,大多数研究都使用人第一语言和身份第一语言,但倡导优先考虑人第一语言以促进尊重.
科学领域:
- 流行病学 流行病学
- 公共卫生 公共卫生
- 医学写作 医学写作
背景情况:
- 出生缺陷与心理社会压力,耻辱,死亡率和残疾有关.
- 科学语言可以影响人们的态度,并导致污名化.
- 个人优先语言 (例如",唐氏综合症婴儿") 旨在促进对身份优先语言 (例如",唐氏综合症婴儿") 的尊重.
研究的目的:
- 提高对出生缺陷研究中第一人语言的认识和倡导.
- 通过促进优先考虑出生缺陷的个体及其家庭的尊严的语言来减少耻辱.
主要方法:
- 分析了2002年至2024年间发表的来自国家出生缺陷预防网络 (NBDPN) 的52篇基于人口的出生缺陷文章.
- 在这些文章中,对个人优先与身份优先语言使用的普遍性进行评估.
- 倡导在现场增加个人第一语言的采用.
主要成果:
- 只有13%的审查文章仅使用第一人称语言.
- 12%的人只使用身份第一语言.
- 显著多数 (73%) 使用了人第一和身份第一语言的组合,其中2%没有使用任何一种.
结论:
- 鼓励研究人员考虑在流行病学研究和培训中使用第一人称语言.
- 承认一些社区可能更喜欢身份优先框架 (例如,聋人社区) 的重要性得到了承认.
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