在患有骨髓增殖性新生体的患者中利用痛苦和护理
Rushil Virendra Patel1, Danielle Boselli2, Patrick L Meadors3
1Department of Hematologic Oncology and Blood Disorders, Levine Cancer Institute, Atrium Health, Charlotte, North Carolina, USA.
Acta haematologica
|February 12, 2025
概括
大多数患有严重困扰的骨髓增殖新生瘤患者没有被转诊到支持性服务. 需要早期干预,以改善这些癌症患者的护理.
科学领域:
- 在瘤学瘤学.
- 血液学 血液学 血液学
- 心理社会瘤学
背景情况:
- 痛苦显著影响癌症患者的结果.
- 国家综合癌症网络 (NCCN) 的指导方针建议应急查 (≥4) 和转诊到支持性服务 (SSs).
- 费城染色体阴性骨髓扩散性新生瘤 (MPNs) 的患病率和医疗利用率仍未得到充分研究.
研究的目的:
- 评估MPN患者的痛苦患病率和医疗保健利用率.
- 评估MPN患者患有困扰 (≥4) 的比例,转移到SS或经历急性护理利用 (ACU).
- 为了确定与MPN患者的痛苦相关的因素.
主要方法:
- 对141名MPN患者 (PV,ET,MF) 的追溯分析.
- 通过电子应急查 (EDS) 和随后的SS评估或ACU在6个月内测量了应急 (≥4).
- 收集社会人口统计,疾病和症状数据进行分层.
主要成果:
- 53%的MPN患者报告患有痛苦 (≥4).
- 只有33%的痛苦患者被SS评估;31%的患者在EDS后6个月内有ACU.
- 痛苦与较高的症状得分和ED访问相关,但不是人口统计或诊断.
结论:
- 尽管NCCN建议,但大多数患有痛苦 (≥4) 的MPN患者并未被转介给SSs.
- 通过SSs评估的患者有更高的ACU,表明未满足的需求.
- 需要进一步的研究,以优化患者报告结果的使用,以便及时进行干预.
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