年轻发病痴呆症非正式护理人员在护理方面的经验:系统性审查
Zong Han Lew1, Adeline Su Lyn Ng2, Wentao Zhou1
1Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.
Journal of advanced nursing
|February 13, 2025
概括
年轻发病痴呆症 (YOD) 的非正式照顾者面临着独特的挑战,包括诊断困难和失业. 适合年龄的支持服务对于他们的福祉和照顾经验至关重要.
科学领域:
- 老年学是一门学科.
- 痴呆症护理研究研究
- 护理人员支持研究研究
背景情况:
- 年轻发病痴呆症 (YOD) 通常影响65岁以下的个体,与晚期发病痴呆症相比,对非正式的照顾者提出了不同的挑战.
- 不正式照顾YOD患者的人经常经历与就业,社会隔离以及年轻人群中疾病进展性相关的独特压力因素.
研究的目的:
- 系统地审查和整理非正式护理人员对年轻发病痴呆症患者的共同护理经验.
- 确定这个独特的护理人员群体所面临的具体挑战,支持需求和应对策略.
主要方法:
- 进行了定性系统审查,综合了2013年至2023年间发表的37项研究的数据.
- 搜索包括多个数据库 (PubMed,MEDLINE,EMBASE,CINAHL,PsycINFO,ProQuest,Scopus,Web of Science,Google Scholar) 的灰色文献和同行评审期刊.
- 数据综合涉及将354个提取的发现纳入25个类别和四个主题的元聚合,使用Joanna Briggs研究所的定性评估工具进行批判性评估.
主要成果:
- 该审查综合了566名非正式护理人员的经验,确定了关键主题:诊断挑战,复杂护理方面的困难,支持服务的经验和应对策略.
- 护理人员报告了独特的挑战,例如失业,这通常不是其他疾病的护理人员所经历的.
- 在适合年龄特定的适合年轻痴呆症非正式照顾者的需求的支持服务的可用性方面,发现了显著的差距.
结论:
- 幼年痴呆症的非正式照顾者经历了一系列独特的照顾挑战,需要专门的支持.
- 迫切需要适合年龄的支持服务,以满足这一群体的独特需求.
- 政策制定者和医疗保健专业人员必须认识到并解决这些独特的经验,以提高年轻痴呆症非正式照顾者的护理和支持质量.
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