患者和护理人员对肺癌治疗决策的见解:一个探索性焦点小组
Julie Vanderpoel1, Nida Imran1, Andy L Johnson1
1Johnson & Johnson, Titusville, NJ, USA.
Current medical research and opinion
|February 13, 2025
概括
患有肺癌的患者优先考虑生存而不是副作用,但害怕报告不良事件 (AE). 关于治疗选择和AE的早期,公开的讨论对于共享决策至关重要.
科学领域:
- 在瘤学瘤学.
- 以患者为中心的护理
- 健康心理学 心理健康心理学
背景情况:
- 肺癌患者往往更喜欢积极的治疗,以获得更好的生存,尽管存在潜在的不良事件 (AE).
- 存在障碍,阻碍患者参与肺癌治疗的共同决策.
- 了解患者和护理人员的观点对于改善治疗讨论至关重要.
研究的目的:
- 从患者及其护理人员的角度探索肺癌治疗决策过程.
- 确定在肺癌护理中共享决策的障碍和促进者.
- 了解患者对治疗疗效和不良事件的优先考虑.
主要方法:
- 涉及重点小组与肺癌患者及其护理人员的定性研究.
- 探索性焦点小组由11名患者和4名护理人员组成.
- 调查也被用来收集患者和护理人员的意见.
主要成果:
- 最初的肺癌治疗决策主要由提供者领导,随着时间的推移,患者的参与度越来越高.
- 患者优先考虑生存而不是不良事件,并担心如果AEs被披露,治疗效率会降低.
- 强调了共同决策,早期AE讨论和患者倡导者访问.
结论:
- 医疗保健提供者应该尽早就个人肺癌治疗方法,生活质量目标和潜在的副作用进行对话.
- 区分AE与疾病进展症状对于明智决策很重要.
- 分发可靠的教育材料可以在患者的治疗过程中赋予患者权力.
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