危急疾病后的残疾:关键概念的定性翻译为ICU后的背景
Leslie P Scheunemann1,2, Janelle C Christensen1, Erica M Motter1
1Division of Geriatric Medicine and Gerontology, University of Pittsburgh, Pittsburgh, PA.
Critical care medicine
|February 13, 2025
概括
能力主义为重症幸存者创造了参与的重大障碍,影响了他们的福祉. 通过干预措施解决能力问题可能会改善恢复和性.
科学领域:
- 社会科学 社会科学 社会科学
- 医疗保健服务研究 医疗服务研究
- 关于残疾人的研究.
背景情况:
- 能力主义是对残疾人的歧视和偏见.
- 它经常通过残疾来定义个人,并假定需要修复.
- 了解能力障碍对临界后疾病的影响对于改善护理至关重要.
研究的目的:
- 描述严重疾病后个体经历的无能力症.
- 检查能力与医疗保健提供之间的关系.
主要方法:
- 对42个个人和10个小组采访的二次分析.
- 利用了修改后的基础理论,并从残疾研究文献中获得了输入.
- 涉及重症幸存者,家庭成员,临床医生和管理人员.
主要成果:
- 能力主义为有意义的参与带来了多方面的障碍,并且在医疗保健系统内是流行病.
- 确定了六种类型的能力主义:幼稚化,感知不能力,否认经验,侵犯隐私,排斥和过度负担提供者.
- 有能力的经历唤起了一系列情绪,从焦虑到愤怒.
结论:
- 能力障碍严重地阻碍了参与,并破坏了重症幸存者的性和福祉.
- 假设反能力主义干预措施可以减少与残疾相关的障碍,并优化康复.
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