评估EQ-5D-Y对中国儿童和青少年的内容有效性
Yifan Ding1, Guangjie Zhang1, Zhihao Yang2
1Erasmus MC, Department of Psychiatry, University Medical Center Rotterdam, Rotterdam, The Netherlands.
概括
EQ-5D-Y有效地衡量了中国年轻人的与健康有关的生活质量,但需要改进. 纳入社会健康和提高清晰度是更好地评估儿童健康经验的关键.
科学领域:
- 儿科健康研究成果 研究成果
- 与健康相关的生活质量 (HRQoL) 测量
- 在儿科人口中进行心理测量验证.
背景情况:
- 与健康相关的生活质量 (HRQoL) 是评估儿童和青少年医疗干预措施的关键指标.
- EQ-5D-Y (3级版本) 是一个广泛采用的工具,用于评估8-18岁的个人HRQoL.
- 对EQ-5D-Y的内容有效性的担忧,特别是在中国人群中,需要进一步调查.
研究的目的:
- 在中国背景下评估EQ-5D-Y的内容有效性,评估其全面性,相关性和可理解性.
- 探索中国健康和患病的儿童和青少年对EQ-5D-Y维度的看法.
- 确定EQ-5D-Y的潜在改进领域,以更好地捕捉中国儿科患者的健康经验.
主要方法:
- 在中国上海进行了一项定性研究,对30名8-18岁的参与者 (15名健康,15名患病) 进行了定性研究.
- 采用半结构面试,收集参与者对EQ-5D-Y五个维度的见解,参考世卫组织对健康的定义.
- 数据分析采用了一个框架方法,使用一个适应的响应问题模型识别了响应挑战.
主要成果:
- 分析产生了126个代码,分为身体 (16),精神 (30),和社会健康 (4) 主题.
- 虽然参与者的回答涵盖了所有五个EQ-5D-Y维度,但社会健康被确定为一个关键方面,但没有明确地纳入该工具.
- 参与者建议加强心理健康的覆盖范围,并在现有维度内提供更具体的例子.
结论:
- EQ-5D-Y显示出对评估中国儿童和青少年的HRQoL的相关性,但需要具体的改进.
- 建议将社会健康纳入EQ-5D-Y,以提高其全面性.
- 提高EQ-5D-Y中问题的清晰度和具体性可以进一步优化其用于捕捉儿科健康经验的实用性.
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