关于早期乳腺癌患者治疗相关副作用信息的经验和偏好
Antonio Di Meglio1, Giuseppe Catanuto2, Marzia Zambon3
1Cancer Survivorship Program, INSERM Unit 981, Gustave Roussy, Villejuif, France.
Breast (Edinburgh, Scotland)
|February 13, 2025
概括
患有早期乳腺癌的患者往往获得不充分的关于治疗副作用的信息. 积极的沟通和多样化的交付方法是首选的,以改善副作用管理和生活质量.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
- 卫生沟通健康沟通
背景情况:
- 与治疗相关的副作用显著影响早期乳腺癌患者的生活质量,坚持和生存.
- 有效管理这些副作用对于最佳的患者结果至关重要.
- 这项研究探讨了患者在乳腺癌治疗期间的副作用信息的经验和偏好.
研究的目的:
- 调查患者报告的经验,并提供有关治疗相关副作用的信息.
- 确定患者对副作用信息的时间,全面性和交付的偏好.
- 为改善乳腺癌患者的沟通策略提供信息.
主要方法:
- 在接受初级治疗和内分泌治疗的早期乳腺癌患者中进行了一项国际在线患者调查.
- 该调查评估了关于治疗副作用的信息的质量,时间和传递方法.
- 对收集的数据进行了描述性分析.
主要成果:
- 疲劳是最常见的副作用.
- 很大一部分患者仅在经历了副作用后才获得了有关副作用的信息,或者获得的信息不足/不存在.
- 患者表示更喜欢医疗保健提供者的积极沟通,重视直接互动和数字工具.
结论:
- 该研究强调了当前关于早期乳腺癌患者治疗副作用的沟通中存在的关键差距.
- 显然需要提供全面及时的信息,以支持患者在整个生存过程中.
- 结果可以指导改进患者教育和支持策略的开发.
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