养育患有自闭症谱系障碍的孩子:对家庭需求的全面分析
Laura Serrano Fernández1, Daniela Henao Campo1, Esther Vela Llauradó1
1Universidad Francisco de Vitoria, Carretera de Pozuelo, km 1800, 28223 Pozuelo de Alarcón, Madrid, Spain.
Acta psychologica
|February 13, 2025
概括
患有自闭症谱系障碍 (ASD) 诊断的学龄儿童的家庭有很大的需求,特别是信息和教育支持. 制定包容性政策对于帮助这些家庭至关重要.
科学领域:
- 儿科 儿科 儿科
- 发展心理学 发展心理学
- 公共卫生 公共卫生
背景情况:
- 自闭症谱系障碍 (ASD) 显著影响家庭.
- 了解家庭需求对于有效的支持至关重要.
研究的目的:
- 探索在西班牙马德里被诊断患有自闭症的学龄儿童的家庭的感知需求.
- 确定关键的需求领域,包括信息,支持和服务.
主要方法:
- 采用了一种非实验性的混合方法设计.
- 收集关于信息,家庭/社会支持,经济援助,照顾,专业支持和社区服务的数据.
- 定性分析探讨了家庭的优先事项.
主要成果:
- 家庭报告了显著增加的需求,特别是信息和教育支持.
- 在ASD个体的依赖/年龄和整体家庭需求之间没有发现显著的相关性.
- 家庭优先考虑获得教育,专业,情感和社会支持.
结论:
- 迫切需要为患有自闭症的家庭制定包容性政策和全面支持策略.
- 解决信息和教育需求至关重要.
- 加强社区和专业支持系统至关重要.
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