全面儿科状细胞护理的障碍和促进因素:一种定性研究
Alyssa M Schlenz1, Elisabeth Vestal2, Christina M Abrams3
1Department of Pediatrics, University of Colorado School of Medicine, Aurora, Colorado, USA.
医疗保健系统和社区的促进者显著改善了患有状细胞贫血 (SCA) 的儿童获得全面护理的机会. 优化这些促进者可以提高受影响家庭的护理参与度.
科学领域:
- 儿科血液学 儿科血液学
- 医疗保健获取研究 医疗保健获取研究
- 公共卫生 公共卫生
背景情况:
- 患有状细胞疾病 (SCD) 的儿童需要全面照顾并发症和治疗.
- 获得护理对于改善儿科SCD的结果至关重要.
- 本研究使用特定模型检查了SCD护理的障碍和促进因素.
研究的目的:
- 描述护理状细胞疾病 (SCD) 儿童的障碍和促进因素.
- 将获得护理模式的概念框架应用于SCD护理.
- 确定影响儿科SCD患者和护理人员获得综合护理的因素.
主要方法:
- 定性描述性研究设计.
- 对27名患者/护理人员进行了半结构面试.
- 利用基于获得护理模式的概念框架的定向内容分析.
主要成果:
- 医疗保健系统的促进者很突出,强调服务的适用性,可用性和适应性.
- 患者/社区辅导员包括感知,寻求,接触,负担得起和参与医疗保健的能力.
- 障碍包括负面的医疗体验和健康的不利社会决定因素.
结论:
- 促进者在为患有状细胞贫血 (SCA) 的儿童获得综合护理方面发挥了比障碍更大的作用.
- 优化医疗保健系统和患者/家庭级方便者是改善护理准入和参与的关键.
- 解决系统性和社区因素可以提高对儿科SCD的护理.
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