患者合作伙伴参与出版过程:挑战和可能的解决方案
Krista E Cooksey1, Mark Neuman2, Mara Bollini3
1Department of Surgery, Division of Public Health Sciences, Washington University School of Medicine, St. Louis, Missouri, USA.
BMC medical research methodology
|February 15, 2025
概括
患者参与健康研究正在增长,但对患者合作伙伴的科学出版指导是有限的. 本文回顾了挑战,并为更容易获得的出版流程提出了建议.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与研究.
- 科学沟通科学沟通
背景情况:
- 资助机构越来越多地要求患者参与健康研究.
- 患者正在积极参与研究设计,进行和领导.
- 患者参与出版过程可以提高研究影响和现实世界的实用性.
研究的目的:
- 确定科学出版中患者合作伙伴的障碍和促进因素.
- 为患者提供更透明和更容易获得的出版程序提供建议.
- 支持患者合作伙伴在导航作者,协作和提交任务.
主要方法:
- 对现有的出版实践进行系统审查.
- 对影响患者参与出版物的障碍和促进者的分析.
- 制定基于证据的建议,以改善出版物的可访问性.
主要成果:
- 目前对于患者合作伙伴的出版物存在有限的系统指导.
- 挑战包括理解著作权标准,书面合作和提交程序.
- 促进者包括明确的沟通,明确的角色和支持性的编辑实践.
结论:
- 科学出版过程需要更大的透明度和患者合作伙伴的可访问性.
- 建议侧重于标准化指导和支持患者参与出版物的指导.
- 加强患者参与出版物,确保研究更好地反映患者的需求和经验.
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