[参与性研究自闭症谱系障碍]
Marie Pieron1, Adeline Lacroix2, Sylvie Chokron3
1CNRS, Integrative Neuroscience and Cognition Center, UMR 8002, université Paris Cité, 75006 Paris, France.
L'Encephale
|February 16, 2025
概括
参与式研究涉及科学家和自闭症患者之间的合作,以解决优先事项,桥梁研究和生活经验. 这种方法对有影响力的自闭症谱系障碍研究的多元专业知识有价值.
科学领域:
- 自闭症谱系障碍研究研究
- 参与式研究方法 参与式研究方法
背景情况:
- 参与式研究是自闭症谱系障碍 (ASD) 研究中的新兴方法.
- 这种方法促进了研究人员,临床医生,自闭症患者及其家人之间的合作.
研究的目的:
- 审查ASD参与式研究的方法.
- 讨论它的科学和社会价值,伦理考虑和局限性.
- 突出方法论关注和资源对公平参与的重要性.
主要方法:
- 这是一篇审查ASD参与式研究方法的意见稿.
- 它综合了有关该主题的现有知识和专家观点.
主要成果:
- 参与式研究确保项目解决所有合作伙伴确定的优先事项.
- 它利用了每个参与者的独特优势,技能和知识.
- 该方法旨在弥合科学研究,临床实践和自闭症患者的生活经验之间的差距.
结论:
- 参与式研究为ASD提供了重要的科学和社会价值.
- 仔细关注方法和资源分配对于成功和公平的实施至关重要.
- 确保充分参与需要为科学家和自闭症患者提供专门的支持.
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