深度智力和多重残疾患者的医疗咨询中的默认知识:一项探索性定性研究
Ilse Harmina Zaal-Schuller1,2,3, K Kruithof1, M Hoogsteyns1
1Department of Ethics, Law & Humanities, Amsterdam UMC, Amsterdam, The Netherlands.
Journal of intellectual & developmental disability
|February 17, 2025
概括
父母的默契知识 (TK) 对于照顾患有严重智力和多重残疾 (PIMD) 的患者至关重要. 医生应该验证并将父母的技术知识纳入医疗决策中,以获得更好的患者护理.
科学领域:
- 医学社会学 医学社会学
- 关于残疾人的研究.
- 质量健康研究 质量健康研究
背景情况:
- 患有深度智力和多重残疾 (PIMD) 的患者有沟通挑战.
- 默认知识 (TK) 对于有效的护理和涉及PIMD患者的医疗咨询至关重要.
研究的目的:
- 探讨在PIMD患者的医疗咨询期间,家长和医生之间的默认知识 (TK) 的表现和考虑.
主要方法:
- 定性感应性主题分析.
- 分析了家长和智力障碍医生之间的14次录音咨询.
主要成果:
- 父母通过观察孩子的行为变化,有效地传达了TK.
- 父母TK的关键领域包括疼痛,睡眠障碍和.
- 医生积极认可并将家长的TK整合到患者护理中.
结论:
- 默契知识 (TK) 在PIMD患者的医疗咨询中起着至关重要的作用.
- 家长的TK显著影响医疗决策.
- 鼓励医生验证和整合家长的技术知识与其他医学知识.
相关概念视频
Techniques of therapeutic communication I: Active Listening, Sharing Observations, Validation, and Using Touch
4.7K
The history of therapeutic communication can be traced back to Florence Nightingale, who emphasized the importance of developing trusting relationships with patients. She taught that the presence of nurses with patients results in therapeutic healing.
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
4.7K
Intellectual Disability
35
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
35
Learning Disabilities
83
Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
Dyslexia
Dyslexia is a...
Dyslexia
Dyslexia is a...
83
Barriers to Effective Communication II
3.6K
The barriers to effective communication also include cultural barriers, semantic barriers, gender barriers, and time constraints.
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
3.6K
Ethical Standards II
640
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
640
Patient-centered Care
1.9K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
1.9K


