了解患有周期性吐综合征的成年和青少年患者的体验:一个概念诱导研究
Katja Karrento1, Melody Wu2, Danielle Rodriguez3
1Medical College of Wisconsin, Milwaukee, WI, USA.
BMC gastroenterology
|February 18, 2025
概括
循环吐综合征 (CVS) 引起严重的恶心和吐,影响日常生活. 这项研究探讨了CVS症状和对患者和护理人员的影响,揭示了显著的胃肠道和肠外负担.
科学领域:
- 胃肠病学 胃肠病学
- 肠-大脑相互作用障碍 肠-大脑相互作用障碍
- 质量健康研究 质量健康研究
背景情况:
- 循环吐综合征 (CVS) 是一种肠-大脑相互作用障碍,伴有偶发性恶心和吐.
- 有限的定性研究存在于特定阶段的CVS症状及其影响.
- 这项研究旨在探索美国CVS患者和护理人员的生活经历.
研究的目的:
- 探索成人和青少年患有CVS的经验.
- 为了确定CVS在不同阶段的特定症状和影响.
- 了解CVS对患者及其护理人员日常生活的影响.
主要方法:
- 进行了定性,横截面,半结构化的概念诱导访谈.
- 采访了13名患有CVS的成年人和15名患有CVS的青少年 (一些与护理人员).
- 使用开放式编码方法分析了采访数据.
主要成果:
- 前兆症状包括恶心,焦虑和腹痛 (成年人);恶心,腹痛和头痛 (青少年).
- 常见的吐阶段症状包括恶心,吐,腹痛,脱水和疲劳.
- 最重要的影响是对吐的焦虑 (成年人),学校中断 (青少年) 和护理人员的痛苦.
结论:
- 肝硬化症呈现出显著的胃肠道和肠外症状.
- 这种疾病严重影响患者的日常活动,情绪健康和日常生活.
- 照顾者也会因为孩子的CVS而经历严重的痛苦.
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