通过Facebook页面探索慢性疼痛故事的语言. 关于叙事和未满足需求的定性研究
Maria Giulia Marini1, Alessandro Braga2, Chiara Lattuada2
1ISTUD-Healthcare Area, Milan, Italy - mmarini@istud.it.
Minerva medica
|February 19, 2025
概括
维度Sollievo的解决方案之一.
科学领域:
- 社会媒体在医疗保健中的作用
- 以患者为中心的沟通.
- 慢性疼痛管理 慢性疼痛管理
背景情况:
- 维度Sollievo是一个以患者为中心的Facebook倡议,提供慢性疼痛资源和同行支持.
- 它解决了慢性疼痛患者经常经历的缺乏认可和理解的问题.
- 该平台作为一个关键的同行互动的虚拟空间.
研究的目的:
- 分析Dimension Sollievo关于患者未满足需求的内容.
- 探索叙事医学 (NM) 在慢性疼痛社会传播中的作用.
主要方法:
- 对Facebook帖子,回复和评论 (2020-2023) 的分析.
- 使用了主题框架 (弗兰克,克莱曼,劳纳,伯恩的交易分析).
- 使用Nvivo和微软Office检查语言,语义,单词频率,隐喻和叙事内容.
主要成果:
- 用户在Facebook页面上找到了一个安全的理解和联系空间.
- 互动加剧围绕感知不公正,如缺乏认可和福利获取问题.
- 主要的主题是"疾病的维度",叙述显示了应对困难和缺乏进展.
结论:
- 叙事医学 (NM) 工具揭示了患者需要认可和被倾听的需求.
- 这项研究是首次调查NM在慢性疼痛社会传播中的潜力.
- 使用NM工具进行知情的适度可以增强慢性疼痛管理文化和患者体验.
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