为晚期癌症患者及其家庭护理人员开发和实施护士交付和基于网络的二极性精神教育计划:分享三臂国际随机对照试验 (DIAdIC) 的经验
Aline De Vleminck1,2, Vincent Van Goethem3,4,5, Sigrid Dierickx3,4,5
1End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Laarbeeklaan 103, Brussels 1090, Belgium.
Palliative care and social practice
|February 19, 2025
概括
本研究详细介绍了一项欧洲试验中为癌症患者和护理人员开发和实施两项精神教育计划的细节. 学到的经验教训为未来国际二干预研究提供了洞察力.
科学领域:
- 在瘤学瘤学.
- 精神瘤学 精神瘤学
- 数字健康数字健康
背景情况:
- 每年有数以百万计的癌症诊断影响患者和护理人员.
- 很少有干预措施共同支持癌症患者和家庭护理人员.
- 关于二元心理教育计划的国际证据有限.
研究的目的:
- 介绍开发和实施FOCUS+和iFOCUS的经验,这两种二元心理教育家庭计划.
- 在六个欧洲国家进行随机对照试验 (RCT) 中详细说明该过程.
- 在国际研究背景下突出挑战和创新解决方案.
主要方法:
- 采用了案例报告方法.
- 开发并实施了两种二元心理教育家庭课程 (FOCUS+面对面,iFOCUS基于网络).
- 记录了多国随机对照试验 (RCT) 的经验.
主要成果:
- 福克斯+和iFOCUS成功地适应了欧洲的环境.
- 在6个欧洲国家注册了431个患者护理人员双组,克服了COVID-19等招聘挑战.
- 评估了干预对情绪功能和自我效能的结果,通过多种措施评估忠实度.
结论:
- 在DIAdIC试验中,成功开发和实施了针对晚期癌症患者和护理人员的二极性精神教育计划.
- 关键的见解包括需要适应特定环境,将程序翻译为eHealth,解决二元化的研究挑战,以及管理务实的RCT问题.
- 经验为未来国际二干预研究提供了宝贵的指导.
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