改善老年黑人成年人的数字癌症护理:定性研究
Paul Wankah1,2, Shivani Chandra2, Aisha Lofters2,3
1Faculty of Dental Medicine and Oral Health Sciences, McGill University, Montreal, QC, Canada.
Journal of medical Internet research
|February 19, 2025
概括
数字癌症护理为年长的黑人成年人带来了障碍,包括数字素养和语言问题. 解决这些不平等问题需要定制的计划和社区支持,以改善所有边缘化群体的访问和使用.
科学领域:
- 数字健康 公平数字健康
- 提供癌症护理 提供癌症护理
- 健康差距 研究 研究 研究 研究
背景情况:
- 数字癌症护理模式正在扩大,但可能会使弱势社区的不平等状况恶化.
- 年长的黑人成年人面临着独特的社会经济和系统性障碍,无法获得医疗保健.
- 关于老年黑人成年人数字癌症护理经验的研究有限.
研究的目的:
- 探索年长的黑人成年人,他们的照顾者和提供者的数字癌症护理经验.
- 确定以患者为中心的数字癌症护理策略.
- 了解如何更好地支持年长的黑人成年人在数字癌症护理环境中.
主要方法:
- 对55名参与者进行了6次焦点小组采访 (年长的患有癌症的黑人成年人,照顾者,医疗保健提供者).
- 使用了以理论为基础的专题分析方法.
- 应用了以患者为中心的护理模式和压迫镜片的协同作用.
主要成果:
- 确定了5个总体主题:访问障碍,护理人员动态,选择自主,数字可访问性和沟通.
- 记录了8个障碍 (例如数字素养,语言) 和6个促进者 (例如社区支持,护理人员协助).
- 强调了当家庭成员提供数字支持时,对权力动态的担忧.
结论:
- 对于年长的黑人成年人来说,数字癌症护理受到许多障碍和促进者的影响.
- 解决障碍和利用社区优势的多方策略对于改善访问至关重要.
- 定制的数字癌症护理计划和支持性的公共政策对于增强边缘化群体的平等至关重要.
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