为晚期癌症患者提供基于网络的教育工具和决策辅助工具:系统性审查
Phoebe Ullrich1, Henrike Voß2, Laura Unsöld2
1Department of Thoracic Oncology, Thoraxklinik Heidelberg, Heidelberg, University Hospital, Translational Lung Research Center Heidelberg (TLRC-H), German Center for Lung Research (DZL), Heidelberg, Germany; Center for Geriatric Medicine, Heidelberg University Hospital, Agaplesion Bethanien Hospital Heidelberg, Heidelberg, Germany.
Patient education and counseling
|February 19, 2025
概括
针对晚期癌症患者的交互式网络工具显示了高满意度和可用性,但对长期影响的证据有限. 需要更多的研究来改善患者的决策和整合息治疗.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 在先进的癌症护理中,患者参与决策至关重要.
- 基于Web的工具为患者提供了可访问和适应的信息.
- 在基于证据的数字教育工具和决策辅助工具方面存在差距.
研究的目的:
- 为晚期癌症患者提供互动网络教育工具和决策辅助工具的概述.
- 评估它们的发展,内容,可行性,可用性和有效性.
主要方法:
- 系统的文献搜索 (开始时间:2023年11月).
- 使用Covidence软件进行查.
- 用SUNDAE检查清单进行叙述分析和质量评估.
主要成果:
- 确定了16种工具 (7种乳腺癌,6种特定癌症,3种混合癌症).
- 开发主要使用文献评论和焦点小组; 内容异质性注意到,有些缺乏终身护理整合.
- 用户测试 (6192名患者) 显示部分采用率低,但满意度高,可行性和可用性.
- 工具部分支持决策准备和医生患者关系;对自我效能,痛苦,生活质量和生存的影响不确定或没有发现.
结论:
- 针对晚期癌症患者的基于网络的工具显示出高用户满意度和可行性.
- 关于长期实施和关键成果的有效性的证据仍然有限且多样化.
- 内容和癌症重点的异质性,需要更好地整合息治疗和终身护理方面.
相关概念视频
Cancer Survival Analysis
321
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
321
Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis
1.5K
The nursing process provides a clinical decision-making framework for patients and families to establish and implement a personalized care plan. Since part of the nurse's duties is to teach patients, the steps of the nursing process are the most effective way to approach instruction. The nursing process and the teaching-learning process are inextricably linked.
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data...
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data...
1.5K
Hazard Ratio
77
The hazard ratio (HR) is a widely used measure in clinical trials to compare the risk of events, such as death or disease recurrence, between two groups over time. It reflects the ratio of hazard rates—the instantaneous risk of the event occurring—between a treatment group and a control group. This measure provides valuable insights into the relative effectiveness of a treatment by assessing how the risk of an event differs between the two groups.
For example, in a clinical trial...
For example, in a clinical trial...
77
Cancer Therapies
7.5K
Cancer therapies are various modes of treatment, such as surgery, radiation therapy, and chemotherapy that are administered to cancer patients.
However, cancer treatments can pose several challenges, as therapies used to kill cancer cells are generally also toxic to normal cells. Moreover, cancer cells mutate rapidly and can develop resistance to chemical agents or radiation therapy. Besides, all types of cancer cells may not respond to the same therapy. Some cancer cells respond to one...
However, cancer treatments can pose several challenges, as therapies used to kill cancer cells are generally also toxic to normal cells. Moreover, cancer cells mutate rapidly and can develop resistance to chemical agents or radiation therapy. Besides, all types of cancer cells may not respond to the same therapy. Some cancer cells respond to one...
7.5K


