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探索耻辱和自我形象:来自接受分析治疗中断的HIV治疗相关研究参与者的混合方法见解

Steven Meanley¹, Lidia Rodriguez Garcia², Nadra E Lisha²

¹Department of Family and Community Health, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.

AIDS patient care and STDs

|February 20, 2025

概括

参加涉及分析性治疗中断 (ATI) 的艾滋病毒治疗研究可能会影响自我形象. 虽然许多人经历了衰退,但有些人在为艾滋病毒研究做出贡献时发现了目标和自豪感,强调了需要心理社会支持的需要.

科学领域:

心理社会研究心理学研究
艾滋病治愈研究研究艾滋病治愈研究
自我形象研究自我形象研究

背景情况:

自我形象是艾滋病毒感染者的关键心理社会方面.
在艾滋病毒治愈研究中的分析治疗中断 (ATI) 对参与者的福祉构成独特的挑战.
了解ATI研究对自我认知的影响对于参与者支持至关重要.

研究的目的:

在涉及ATI的HIV治愈相关研究中探索艾滋病毒感染者的不断变化的自我形象.
识别影响自我形象的关键因素,包括内化耻辱感,情感强度和心理社会经验.
描述在ATI研究参与期间自我形象变化的定量和定性维度.

主要方法:

混合方法方法结合了定量调查和定性访谈.
从SCOPE-ATI副研究 (NCT00187512) 的SCOPE队列 (NCT04359186) 中收集的数据.
在ATI前,ATI后和研究结束时评估的定量数据;在多个时间点进行的定性访谈.

主要成果:

在研究过程中,观察到自我形象得分的普遍下降.
参与者报告说,通过参与研究,他们对减轻艾滋病毒污名感有相当大的同意.
定性主题揭示了与内化艾滋病毒污名的斗争和寻找生活目的,以及对科学贡献的骄傲.

结论:

参与艾滋病毒治愈研究与ATI涉及复杂的情感经历影响自我形象.
虽然一些参与者经历了自我形象的减少,但其他人从他们的利他主义贡献中获得了意义和赋权.
心理社会支持和加强参与者的科学贡献对于增强他们的研究经验至关重要.

关键词:

艾滋病毒治愈研究研究艾滋病治愈研究分析治疗中断分析治疗中断自己形象的自我形象.污名污名污名污名

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