了解严重儿科喘患者的护理人员负担 - - 一项定性研究
Ping Wu1,2, Jiahui Zhang1, Yijing Hu1
1Department of Pulmonology, Shanghai Children's Hospital, School of Medicine, Shanghai JiaoTong University, Shanghai, People's Republic of China.
Journal of multidisciplinary healthcare
|February 20, 2025
概括
患有严重喘儿童的护理人员经历了重大的情感和实际负担,包括时间限制和家庭功能障碍. 有针对性的支持计划对于改善对这些儿童的照顾至关重要.
科学领域:
- 儿科肺病学 儿科肺病学
- 质量健康研究 质量健康研究
- 护理人员支持护理人员支持
背景情况:
- 在儿童中,严重的喘给主要护理人员带来了独特的挑战.
- 了解这些护理人员所面临的多方面的负担对于有效的干预至关重要.
研究的目的:
- 阐明严重喘儿童的主要照顾者所经历的情感和实际负担.
- 确定照顾患有严重喘儿童的个体的具体支持需求.
主要方法:
- 采用了定性现象学方法.
- 半结构面试对上海儿童医院的12名故意抽样的护理人员进行了半结构面试.
- 使用Colaizzi 7步方法进行主题分析,对采访数据进行了应用.
主要成果:
- 护理人员报告了多个障碍,包括不完整的疾病知识和儿童不合格.
- 过度的时间和能量消耗,包括睡眠障碍,是很大的负担.
- 家庭功能障碍,以冲突和经济压力为标志,以及恐惧和担忧等负面情绪普遍存在.
结论:
- 患有严重喘儿童的照顾者面临着严重的压力因素,影响家庭动态和个人福祉.
- 医疗保健专业人员和社区必须提供加强的支持,包括为儿童提供自我管理教育.
- 制定有针对性的支持计划对于改善严重喘儿童及其家属的护理至关重要.
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