在儿科癌症中寻找家长痛苦的常规查的好处:试点实施有效性研究
Xiomara Skrabal Ross1,2, Janine Kemp3, Claire Radford4
1Cancer and Palliative Care Outcomes Centre, at Centre for Children's Health Research, Queensland University of Technology, Brisbane, Queensland, Australia.
Pediatric blood & cancer
|February 20, 2025
概括
针对患有癌症儿童的父母的电子心理社会支持干预 (eMaP) 是可行的和可以接受的,显著减少了父母的痛苦,改善了生活质量. 需要进一步的研究来完善干预措施并确认有效性.
科学领域:
- 儿科瘤学 儿科瘤学
- 心理社会支持 心理社会支持
- 实施科学 实施科学
背景情况:
- 患有癌症儿童的父母面临着严重的社会心理困境.
- 现有的支持系统可能无法充分满足这些需求.
- 电子干预为心理社会护理提供了一个可扩展的解决方案.
研究的目的:
- 评估eMaP干预措施的初步有效性.
- 评估实施结果,包括可行性,可接受性和成本.
- 探索eMaP对父母心理社会福祉的影响.
主要方法:
- 一项试点实施效果研究将eMaP整合到标准护理中.
- 家长完成了在线危险查;高危情绪的个人得到了社会工作者的支持.
- 通过采用/完成率评估可行性;通过社会工作者时间评估成本;通过采访评估可行性.
主要成果:
- 较高的母企业参与率 (86%) 表明对eMaP有很强的兴趣.
- 接受社会工作者支持的父母的痛苦显著减少,生活质量得到改善.
- 父母和社会工作者都认为例行查是可行的和有价值的.
结论:
- 对于家长和工作人员来说,eMaP干预是可行的,可以接受的.
- 对于癌症儿童的父母来说,eMaP在改善心理社会结果方面表现有希望.
- 建议进行改进和进一步的疗效研究.
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