青少年和家长的代理在线记录访问:基于四个生物伦理原则的经验证据分析
Josefin Hagström1, Maria Hägglund2,3, Charlotte Blease2,4
1Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden. josefin.hagstrom@uu.se.
BMC medical ethics
|February 20, 2025
概括
青少年和父母访问电子健康记录 (EHR) 可以提高自主性和药物管理. 然而,医疗保健专业人员担心文档质量,并对青少年的理解和焦虑存在担忧,需要进一步的伦理研究.
科学领域:
- 生物医学伦理 生物医学伦理
- 医疗信息学 医疗信息学
- 青少年健康 青少年健康
背景情况:
- 全球范围内,患者对电子健康记录 (EHR) 的访问正在增加.
- 欧盟的政策正在加强患者在线EHR访问的权利.
- 对于青少年和家长的电子医疗记录访问的伦理考虑仍然未得到充分探索.
研究的目的:
- 探索围绕青少年和家长访问青少年电子健康记录的伦理问题.
- 为制定关于电子健康登记权访问的伦理和政策指南提供信息.
主要方法:
- 生物医学伦理原则的应用.
- 对患者在线记录访问 (ORA) 的当前实证研究的分析.
主要成果:
- 初步证据表明,ORA可以增强青少年和家长的自主权,并有助于管理预约和药物.
- 在使用者 (青少年/家长) 和医疗保健专业人员 (HCP) 之间,关于益处和危害存在对比的观点.
- 对青少年理解和焦虑的担忧,以及卫生保健工作者对文档质量的担忧,构成了障碍.
结论:
- 需要进一步的经验研究来了解ORA对青少年和家长的影响.
- 对临床实践的基于证据的关于EHR访问的伦理指南需要开发.
- 调查青少年阅读电子健康记录的经验和不同环境的变化至关重要.
关键词:
青少年健康 青少年健康青少年 青少年 青少年电子健康记录电子健康记录伦理学 伦理学 伦理学守护者 守护者 守护者在线记录访问在线记录访问.开放的笔记 开放的笔记父母 父母 父母 父母 父母 父母 父母患者门户网站 患者门户网站更多相关视频
08:01Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
Published on: November 30, 2022
4.1K
11:21Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
8.2K
相关概念视频
Ethics and Bioethics
1.3K
Ethics is a philosophical study of moral actions. Ethics attempts to determine what is valuable for individuals and society. It examines the rational justification of moral judgments and analyzes what is morally just, fair, and right. Bioethics is a sub-discipline of applied ethics that analyzes the philosophical, social, and legal issues in life sciences and medicine. Ethical theories serve as a foundation for decision-making and represent the viewpoints from which people seek direction. They...
1.3K
Bullying
8.3K
A modern form of aggression is bullying. As you learn in your study of child development, socializing and playing with other children is beneficial for children’s psychological development. However, as you may have experienced as a child, not all play behavior has positive outcomes. Some children are aggressive and want to play roughly. Other children are selfish and do not want to share toys. One form of negative social interactions among children that has become a national concern is...
8.3K
Influence of Parents and Peers on Identity
41
Adolescence is a pivotal period of identity formation, during which individuals begin to answer questions central to their sense of self, such as "Who am I?" and "Who do I hope to become?" Both parents and peers play critical roles in guiding adolescents through this complex developmental phase.
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
41
Ethical Dilemmas I
793
Ethical dilemmas in nursing are of utmost importance, as they often arise from the tension between adhering to core ethical principles and the practical realities of healthcare delivery. These dilemmas require nurses to navigate complex situations where competing ethical considerations pull them in different directions.
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
793
Archival Research
15.9K
Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
15.9K
Ethical Standards I
771
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
771
