健康研究数据访问治理:一个黑子挑战
Paula McDonald1, Robyn Mayes1, Peter Frederiksen2
1Faculty of Business and Law, Queensland University of Technology, 2 George Street, Brisbane, Qld, Australia.
概括
健康数据的保管人
科学领域:
- 卫生系统研究 卫生系统研究
- 组织治理 组织治理
背景情况:
- 现有的文献重点是针对健康研究的伦理审查和特定场所的批准.
- 卫生研究治理的低效率导致失去了知识和错过的机会.
- 复杂的卫生系统带来了独特的治理挑战.
研究的目的:
- 确定及时和透明的健康研究的主要障碍.
- 探索组织治理和健康数据保管人的声誉问题.
- 在复杂的卫生系统中发现超越标准批准的额外障碍.
主要方法:
- 分析当地医院网络中的经验.
- 对组织治理和数据保管人的观点进行定性评估.
- 关于卫生研究治理效率低下的文献综述.
主要成果:
- 卫生数据保管人的知名度问题是主要障碍.
- 除了伦理审查之外,复杂的卫生系统内还存在额外的活跃障碍.
- 目前的治理流程不足以确保及时和透明的研究.
结论:
- 组织治理,特别是声誉问题,严重阻碍了健康研究.
- 解决卫生系统内的系统性障碍对于推进卫生系统研究至关重要.
- 改革治理流程可以释放知识资本并改善健康结果.
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