评估患有多发性硬化症的人的知识和信息搜索行为:横截面问卷研究
Véronique Duguay1, Dominique Comeau2, Tiffany Turgeon3
1Centre de Formation Médicale du Nouveau-Brunswick, Université de Sherbrooke, Moncton, NB, Canada.
Journal of medical Internet research
|February 25, 2025
概括
患有多发性硬化症 (MS) 的人经常在网上寻找健康信息,但容易受到错误信息的影响. 即使在临床教育中,他们也很难识别虚假的说法,强调需要针对网络错误信息进行有针对性的教育.
科学领域:
- 神经学 神经学
- 卫生传播健康传播
- 信息科学 信息科学 信息科学
背景情况:
- 互联网是患有多发性硬化症 (MS) 的人的主要健康信息来源.
- 在线健康错误信息的流行对MS患者构成重大风险.
- 专门的MS诊所强调教育是患者护理的核心组成部分.
研究的目的:
- 调查MS患者的健康知识和信息搜索行为.
- 评估当前教育策略在打击错误信息方面的有效性.
- 识别MS患者使用的健康信息来源.
主要方法:
- 对69名被诊断患有多发性硬化症的参与者进行了横截面调查.
- 该调查包括20个关于MS事实和错误信息的真实/错误陈述.
- 参与者的健康寻求行为和信息来源也被记录下来.
主要成果:
- 参与者正确回答了69%的科学事实问题,但只有22%的错误信息问题.
- 与科学事实得分相比,错误信息得分明显高 (表明更多的错误答案或犹不决).
- 虽然专家主导的网站和医疗保健专业人员是主要的信息来源,但口碑和社交媒体也被使用.
结论:
- 目前基于临床的教育和依赖高质量的来源并不能完全保护MS患者免受错误信息的影响.
- 迫切需要积极主动的教育,专门解决常见的基于网络的MS错误信息.
- 为有效的患者护理创造一个安全的空间,让患者在没有判断的情况下讨论在线信息是必不可少的.
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