康复在儿童癌症护理中的重要作用:一种混合方法研究
Allison J L'Hotta1, Hannah E Rice2, Amela Siječić2
1Department of Physical Medicine and Rehabilitation, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
Pediatric blood & cancer
|February 25, 2025
概括
儿童癌症幸存者及其家长高度重视康复,他们希望将其纳入癌症护理. 根据他们的经验,开发了一个新的信息表,被发现易于理解和有用.
科学领域:
- 儿科瘤学 儿科瘤学
- 康复医学 康复医学 康复医学
- 生活质量研究 研究 生命质量研究
背景情况:
- 康复,包括身体,职业和语言治疗,旨在改善功能和生活质量 (QOL),但并未始终融入儿科瘤治疗.
- 这项研究解决了需要更好地整合癌症儿童康复服务的需求.
研究的目的:
- 为儿童癌症患者及其家属开发康复信息表.
- 将儿童癌症幸存者 (CCS) 和他们的父母/照顾者的生活经验纳入本资源的开发中.
主要方法:
- 在两个美国儿童医院进行了一项混合方法研究,主要是定性研究.
- 与13名CCS (12-25岁) 和33名家长/照顾者进行了半结构化访谈.
- 调查结果为创建康复信息表提供了信息,然后由CCS,护理人员和临床医生 (n=36) 通过电子调查进行审查.
主要成果:
- 参与者报告说,康复治疗在癌症治疗期间促进了正常,自信和心理健康.
- 关键障碍包括治疗副作用,保险问题和安排,而清晰的沟通和一致的提供者促进了参与.
- 开发的信息表在可理解性 (99%) 和适当的内容量 (86%) 方面获得了很高的评价.
结论:
- 儿童癌症幸存者及其父母/照顾者高度重视康复服务.
- 显然需要更有效地将康复纳入儿童癌症患者的综合护理.
相关概念视频
Specialized Care Centers and Settings-II
694
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
694
Restorative Care
1.9K
Restorative care is provided once a patient has been discharged from a healthcare facility and requires additional services. The additional services include home care, rehabilitation programs, and extended care. Restorative care centers help the patient regain their previous level of functioning or acquire a new level of functioning due to the incapacitating effects of a disease or a disability. It aims to assist patients in enhancing their quality of life by encouraging independence,...
1.9K
Combination Therapies and Personalized Medicine
4.8K
Combining two or more treatment methods increases the life span of cancer patients while reducing damage to vital organs or tissue from the overuse of a single treatment. Combination therapy also targets different cancer-inducing pathways, thus reducing the chances of developing resistance to treatment.
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
4.8K
Cancer Survival Analysis
320
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
320
Cancer Therapies
7.5K
Cancer therapies are various modes of treatment, such as surgery, radiation therapy, and chemotherapy that are administered to cancer patients.
However, cancer treatments can pose several challenges, as therapies used to kill cancer cells are generally also toxic to normal cells. Moreover, cancer cells mutate rapidly and can develop resistance to chemical agents or radiation therapy. Besides, all types of cancer cells may not respond to the same therapy. Some cancer cells respond to one...
However, cancer treatments can pose several challenges, as therapies used to kill cancer cells are generally also toxic to normal cells. Moreover, cancer cells mutate rapidly and can develop resistance to chemical agents or radiation therapy. Besides, all types of cancer cells may not respond to the same therapy. Some cancer cells respond to one...
7.5K
Modeling in Therapy
42
Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
42

