有限英语水平的女性对患者门户的看法,经验和信仰:多元文化定性访谈研究
Hae-Ra Han1,2, Joyline Chepkorir1, Tina Kim1
1Johns Hopkins University School of Nursing, Baltimore, MD, United States.
Journal of medical Internet research
|February 26, 2025
概括
患者门户网站为英语水平有限的女性 (LEP) 提供福利,但数字素养和语言获取等障碍必须解决,以实现健康公平. 提高这些资源是关键.
科学领域:
- 医疗信息学 医疗信息学
- 健康 公平 卫生 公平
- 数字健康数字健康
背景情况:
- 在美国,有限英语水平 (LEP) 的人口面临着严重的健康差异.
- 患者门户网站对于预防性服务是有效的,但对LEP人群的利用不足.
- 关于LEP个人与患者门户网站的经验的研究很少.
研究的目的:
- 探索LEP妇女对患者门户的看法,经验和信仰.
- 在不同语言群体中识别患者门户网站采用的促进者和障碍.
- 收集关于开发针对LEP女性量身定制的患者门户网站功能的见解.
主要方法:
- 与28名韩语,西班牙语和斯瓦希里语的女性进行了定性半结构面试.
- 通过各种招聘策略进行有目的的抽样.
- 面试的重点是患者门户的经验,可行性,相关性和所需的改进.
主要成果:
- 常见的主题包括感知到的好处 (例如,改善沟通,医疗记录访问),促进者 (例如,智能手机可用性,家庭支持) 和障碍 (例如,数字素养,LEP,文盲).
- 首选的功能是扩展语言访问,可访问的健康信息 (图形,患者教育) 和用户支持.
- 斯瓦希里语使用者的独特发现包括文盲作为障碍,智能手机/互联网可用性作为促进者.
结论:
- 患有LEP的女性承认患者门户的好处,但面临着与健康的社会决定因素相关的重大障碍.
- 解决有限的数字素养,技术获取,语言障碍和文盲问题至关重要.
- 促进对患者门户网站的公平访问对于实现健康公平至关重要.
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