坦白谈话:家长们为孩子做心脏手术做准备的经历
Sage Hay1, Jenny O'Neill1,2
1The Royal Children's Hospital, Melbourne, VIC, Australia.
概括
准备儿童接受心脏手术需要为父母提供量身定制的信息和资源. 这种方法有助于父母有效地沟通复杂的医疗细节,减少孩子在先天性心脏病治疗期间的焦虑.
科学领域:
- 儿童心脏病学 儿童心脏病学
- 儿童心理学 儿童心理学
- 医疗保健通讯 医疗保健通讯
背景情况:
- 缺乏关于准备幼儿进行心脏手术的文献.
- 遗传性心脏病 (CHD) 需要经常进行医疗干预.
- 父母在为孩子准备医疗手术方面的作用至关重要,但未被充分探索.
研究的目的:
- 探讨家长为心脏手术准备和支持患有心脏病的儿童 (3-8岁) 的经验.
- 确定家长信息需求和支持策略中的关键主题.
- 为儿童心脏病患者提供更好的准备资源的开发提供信息.
主要方法:
- 探索性描述性定性研究设计.
- 半结构面试与7名父母的孩子年龄3-8岁接受心脏手术.
- 对转录的采访数据进行反思性的专题分析.
主要成果:
- 出现了四个主要主题:不断变化的信息需求,预测焦虑,信息传递中的诚实以及对资源的需求.
- 父母需要在将医疗信息翻译成适合儿童的解释方面得到支持.
- 赋予父母权力是有效地为儿童准备心脏手术的关键.
结论:
- 对接受心脏手术的儿童的支持应该优先为父母提供资源和沟通策略.
- 需要互动和可联系的资源来帮助父母准备孩子.
- 提高家长能力可以改善孩子的程序经验,减少焦虑.
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