开发和试点测试以患者为中心的生殖决策援助,用于怀孕能力强,患有风湿性疾病的人.
Mehret Birru Talabi1, Megan E B Clowse2, Kaleab Abebe3
1University of Pittsburgh and University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
ACR open rheumatology
|February 27, 2025
概括
一个名为MyVoice:Rheum的新工具支持患有风湿和肌肉骨疾病 (RMDs) 的妇女做出明智的生殖决策. 试验结果表明,它是可行的,可以接受的,并可能改善计划生育讨论和患者知识.
科学领域:
- 类风湿病学 类风湿病学
- 生殖健康 生殖健康
- 数字健康数字健康
背景情况:
- 患有风湿性和肌肉骨疾病 (RMDs) 的女性面临更高的妊娠不良结果风险.
- 许多患有RMD的妇女报告说,她们缺乏资源来做出明智的生殖决策.
- 有效的生殖健康支持对于在生育年龄管理RMD至关重要.
研究的目的:
- 开发和试点测试MyVoice:Rheum,这是一个基于Web的决策辅助工具,用于患有RMD的女性.
- 评估MyVoice:Rheum的可行性,可接受性和可用性.
- 评估MyVoice:Rheum在促进计划生育讨论和提高生殖知识和自我效能方面的初步有效性.
主要方法:
- 采用了一种并行臂随机试验试验设计.
- 18-44岁的患有RMD的女性被分为3:1的MyVoice:Rheum或控制小册子.
- 评估了可行性,可接受性,可用性,计划生育讨论,生殖知识和沟通自我有效性.
主要成果:
- 参与者认为MyVoice:Rheum是可行的,可以接受的,易于使用的.
- 计划生育讨论发生在61%的MyVoice:Rheum用户身上,而对照组只有44%.
- MyVoice:Rheum使用者在干预后表现出更高的自我效能和知识分数.
结论:
- MyVoice:Rheum是一个可行,可接受和可用的工具,用于女性的RMDs.
- 初步数据表明,MyVoice:Rheum可能会加强计划生育讨论和患者在风湿病学环境中的赋权.
- 需要进一步的大规模研究来证实这些有希望的发现.
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