系统性硬化症对妇女健康的影响通过专门开发的患者报告问卷来评估
Maria-Grazia Lazzaroni1, Liala Moschetti1, Eleonora Pedretti1
1Rheumatology and Clinical Immunology Unit, ERN ReCONNET Centre, ASST Spedali Civili of Brescia; Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy.
Journal of scleroderma and related disorders
|February 27, 2025
概括
系统性硬化症对妇女的生活质量产生负面影响,影响性功能和计划生育. 定期的妇科护理和解决生殖健康需求对于管理女性这种类风湿性疾病至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 妇女健康 妇女健康
- 生活质量研究 研究 生命质量研究
背景情况:
- 风湿性疾病 (RDs) 显著影响女性与健康相关的生活质量.
- 系统性硬化症 (SSc),主要影响女性,呈现出不同的临床特征和对日常生活的影响.
研究的目的:
- 具体评估系统性硬化症 (SSc) 患者的女性健康方面,使用量身定制的问卷.
- 了解被诊断为SSc.的妇女所面临的独特健康挑战.
主要方法:
- 在意大利语中开发一个匿名的,自我报告的问卷,与专家和患者代表共同创建.
- 在2021年4月至2023年3月期间,向SSc患者在门诊类风湿病学SSc诊所的SSc患者提供问卷.
主要成果:
- 168名SSc患者参与;44.1%的患者在生殖年龄被诊断出来. 对癌症查的高度遵守 (86.9%的宫癌,93.6%的乳腺癌),但妇科随访不规则 (36.4%).
- 在66.2%完成FSFI的患者中报告了性功能障碍,与疾病严重程度和数字有关.
- 如果需要,超过90%的人接受了怀孕前咨询,但只有37.8%的人讨论了避孕. 43.6%的家庭由于健康问题而无法达到理想的家庭规模.
结论:
- 新的调查问卷提供了对女性与SSc.的经验的全面评估.
- 疾病负担会对性功能和妇科护理的坚持产生负面影响;生殖年龄期间的诊断可能会减少家庭规模.
- 临床医生应将这些女性健康领域纳入常规的SSc管理,以提高患者的健康素养.
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