家长和儿科护士从业人员对将数字TELL工具干预集成到临床实践中的观点
Patricia E Hershberger1, Kirby Adlam2, Martha Driessnack3
1Department of Health Behavior and Clinical Sciences, School of Nursing, University of Michigan, 400 North Ingalls St., Ann Arbor, MI 48109, USA; College of Nursing, University of Illinois Chicago, 845 S. Damen Ave., MC 802, Chicago, IL 60612, USA.
家长和儿科护士从业人员 (PNP) 发现,授权家长讲述和说话的工具 (TELL工具) 对于讨论遗传起源是有益的. 该工具支持家长和PNPs在导航这些敏感的对话.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 遗传学和生殖生殖学
- 数字健康干预措施 数字健康干预措施
背景情况:
- 与儿童讨论遗传起源对于使用雌性细胞或胚胎捐赠的家庭至关重要.
- 父母和医疗保健提供者需要有效的工具来促进这些敏感的对话.
- 授权家长讲述和说话的工具 (TELL工具) 是一个数字干预,旨在支持这些讨论.
研究的目的:
- 在试点随机对照试验 (RCT) 中,探索家长参与者对TELL工具的看法.
- 了解儿科护士从业人员 (PNP) 关于将TELL工具集成到临床实践中的观点.
主要方法:
- 定性描述性研究,涉及10名家长和10名PNP的深入,半结构化访谈.
- 采访通过Zoom进行,录音,转录,并分析主题.
- 严格和加速数据减少 (RADaR) 技术用于分析.
主要成果:
- 出现了五个主要主题:对TELL工具的看法,交付的最佳时间,披露咨询的适当医疗保健提供者,实践中的挑战和实施建议.
- 家长报告说,他们对分享信息的信心增加了,并赞赏该工具的适合年龄的内容.
- PNP认为TELL工具有助于提供关于遗传起源对话的预期指导和咨询.
结论:
- 父母发现TELL工具很有帮助,增强了他们对遗传起源的信心和沟通.
- 国家公众代表表示支持将TELL工具整合到儿科临床环境中.
- TELL工具是PNP的基于证据的资源,帮助家庭讨论从雌性体和胚胎捐赠的遗传起源.
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