在患有全身性红斑狼的青少年中,疾病感知和心理困扰
Navaporn Tangkittiwet1, Sirirat Charuvanij2, Boonying Manaboriboon3
1Department of Pediatrics, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand.
Lupus
|March 2, 2025
概括
疾病感知显著影响系统性红斑狼 (SLE) 青少年的心理健康. 负面看法与抑郁症状,焦虑和疲劳的增加相关,突出了需要有针对性的心理支持.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 青少年健康 青少年健康
- 心理医学 心理医学
背景情况:
- 在系统性红斑狼 (SLE) 中,疾病感知和心理健康得到了认可.
- 在患有SLE的青少年中,疾病感知与心理问题之间的具体关系还不清楚.
- 了解这种联系对于改善这种脆弱人群的护理至关重要.
研究的目的:
- 评估SLE青少年的疾病感知和心理结果之间的相关性.
- 在这个群体中确定与负面疾病感知相关的因素.
- 为青少年SLE患者提供临床干预信息.
主要方法:
- 一项涉及102名被诊断患有SLE的青少年 (12-18岁) 的横截面研究.
- 使用了关于疾病感知 (B-IPQ),抑郁症状 (PHQ-A),焦虑 (GAD-7),疲劳,疼痛 (VAS-P) 和睡眠质量 (PSQI) 的验证问卷.
- 疾病活动 (SELENA-SLEDAI,PGA) 和器官损伤 (SDI) 也被评估;多变量回归确定了相关因素.
主要成果:
- 观察到抑郁症状 (31.4%),焦虑 (14.7%),疼痛 (14.7%) 和睡眠质量差 (29.4%) 的显著流行.
- 负面的疾病感知适度与抑郁症状,焦虑和疲劳相关.
- 糟糕的社会关系和更高的医生全球评估 (PGA) 分数与负面的疾病感知有关.
结论:
- 心理困扰,包括抑郁,焦虑,疲劳,疼痛和睡眠障碍,与SLE青少年的疾病感知有显著的联系.
- 这些发现强调了解决疾病感知在管理这些患者的心理健康方面的重要性.
- 需要进一步的研究来探索疾病感知对坚持和长期结果的影响.
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