探索使用息和终身护理服务的患者和家庭所面临的挑战:定性焦点小组研究
Gina Kallis1, Gary Hodge1, Hannah Wheat2
1School of Nursing and Midwifery (Faculty of Health), University of Plymouth, Plymouth, United Kingdom.
Palliative & supportive care
|March 3, 2025
概括
在英格兰西南部,息护理的准入不足,患者和家人面临沟通问题,缺乏工作时间之外的支持,以及被遗弃的感觉. 需要进行改进,以增强个人及其照顾者的生命终结体验.
科学领域:
- 息护理研究 息护理研究
- 生命终端研究研究.
- 医疗保健的可访问性 医疗保健的可访问性
背景情况:
- 据报道,英国的息护理准入不足,特别是在英格兰西南部的农村地区.
- 该地区因人口老龄化和地理隔离而面临挑战.
- 此前在这个特定领域的研究是有限的.
研究的目的:
- 探索英格兰西南地区患者和家庭对终身护理的体验.
- 确定临近生命终点的个人及其家人所面临的挑战.
- 促进协作识别改善护理领域.
主要方法:
- 进行了6个定性焦点小组.
- 参与者包括接近生命终点的个人,家庭成员和丧亲的个人.
- 焦点小组由研究人员协助,主要是亲自参加.
主要成果:
- 确定的挑战跨越了患者和家庭护理者的旅程.
- 关键问题包括沟通障碍,办公时间以外的护理不足,以及缺乏个性化的支持.
- 患者和家人报告日常困难,改变家庭角色,创伤性死亡和被遗弃的感觉.
结论:
- 这项研究是未来研究的公共-学术伙伴关系的基本步骤.
- 确定的领域突出了改善终身护理提供机会.
- 提高患者,护理人员和家庭的护理体验是最终目标.
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