评估YouTube作为关于肌缩侧面硬化症的信息来源
Liamuel Giancarlo V Untalan1, John Paulo D Malanog1, Roland Dominic G Jamora1,2
1Division of Adult Neurology, Department of Neurosciences, College of Medicine and Philippine General Hospital, University of the Philippines Manila, Manila, Philippines.
Digital health
|March 3, 2025
概括
关于肌缩侧面硬化症 (ALS) 的YouTube视频提供中等到低质量和可靠性,可理解性差. 医疗保健和教育视频更好,但用户在线寻找ALS信息时应谨慎.
科学领域:
- 神经科学是一个神经科学.
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
背景情况:
- 肌缩侧面硬化症 (ALS) 是一种进展性神经退行性疾病.
- YouTube已成为在线健康信息的重要来源.
- 在YouTube上评估ALS内容的质量对于患者教育至关重要.
研究的目的:
- 评估关于ALS的YouTube视频的质量,可靠性,可操作性和可理解性.
- 在YouTube上识别更高质量的ALS视频的特征.
主要方法:
- 在YouTube上对ALS视频进行了系统的搜索.
- 240个视频被两个独立的评级人员使用质量评估工具评估.
- 收集了视频特征,包括上传者类型和参与度量.
主要成果:
- 在YouTube上播放的ALS视频的质量和可靠性一般为中低 (GQS/mDISCERN中位数为2.5),可理解性/可操作性较差 (PEMAT中位数为8.5).
- 视频长度和上传者类型 (医生,医疗保健专业人员,教育频道) 与更好的质量有显著的相关性.
- 更高的参与度指标并不总是与更好的视频质量相关.
结论:
- 由于质量低和易理解性差,YouTube作为ALS信息的最佳来源.
- 较长的视频以及来自可信的医疗保健或教育来源的视频往往更具信息性.
- 用户应该批判性地评估YouTube上的ALS视频内容,密切关注来源和特征.
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