通过远程医疗解决耻辱和隐私问题:提高种族和少数民族群体艾滋病毒护理参与度的定性研究结果
Neal Carnes1, Linda J Koenig2, Aisha L Wilkes2,3
1Division of HIV Prevention, STD and TB Prevention, Centers for Disease Control and Prevention, National Center for HIV, Viral Hepatitis, Atlanta, GA, USA. Ncarnes@cdc.gov.
远程医疗在艾滋病毒护理中为一些患者提供了减少的耻辱感,但对其他人来说却引发了隐私问题. 患者选择的护理形式和解决医疗保健的耻辱是有效的艾滋病毒管理的关键.
科学领域:
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
- 传染性疾病 传染性疾病
背景情况:
- 远程医疗融入艾滋病毒治疗带来了独特的机遇和挑战.
- 了解患者和提供者经验对于成功实施至关重要,特别是在城市少数群体中.
研究的目的:
- 评估患者,工作人员和提供者在艾滋病毒护理中使用远程医疗的经验.
- 探索影响艾滋病毒感染者与远程医疗接触的决策因素.
- 识别艾滋病毒服务中远程医疗采用的促进者和障碍.
主要方法:
- 进行了13个重点小组,共有46名参与者,包括PWH (接受和拒绝远程医疗) 和医疗保健工作人员.
- 评估了与远程医疗参与相关的经验,促进/阻碍因素和决策过程.
- 专注于佛罗里达大学杰克逊维尔医学院的一个示范项目.
主要成果:
- 一些PWH发现,与面对面的访问相比,远程医疗减少了经历的耻辱感.
- 其他PWH由于侵犯隐私,披露风险和虚拟环境中的机密性问题而拒绝远程医疗.
- 医疗保健专业人员报告了关于远程医疗促进护理的混合观点.
结论:
- 允许PWH在艾滋病毒护理的个人和远程医疗格式之间进行选择是必不可少的.
- 减少医疗机构污名化的干预措施对于改善艾滋病毒护理的提供至关重要.
- 远程医疗在艾滋病毒治疗中的作用需要仔细考虑患者的偏好和隐私问题.
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