改善量化大数据清理公平性的议定书:从对代表性不足和边缘化社区电子健康记录的纵向分析中得出的教训
Zeruiah V Buchanan1,2, Scarlett E Hopkins3,4, Bert B Boyer3,4
1Department of Epidemiology, University of Washington, Seattle, WA, United States.
International journal of epidemiology
|March 4, 2025
概括
一种新的现象学方法来过电子健康记录 (EHR) 确保了对边缘化人口的更公平的数据表示. 这种方法提高了数据的包容性,并支持对文化敏感的研究发现.
科学领域:
- 生物医学信息学是生物医学信息学.
- 流行病学 流行病学
- 卫生公平性健康公平性
背景情况:
- 电子健康记录 (EHR) 对流行病学研究至关重要.
- 电子健康记录中的传统数据过方法往往排除了边缘化群体.
- 这种排除导致数据丢失,忽视了代表性不足的社区.
研究的目的:
- 引入一种新的,公平的数据过方法,用于电子健康记录.
- 为了解决常见数据过方法的局限性.
- 促进文化敏感的研究和发现.
主要方法:
- 开发了一种现象学 (个体) 数据过方法.
- 适用于来自尤肯-库斯科奎姆健康公司 (2002-2012) 的电子健康记录.
- 涉及的不包括生物不可能,每个人在3个标准偏差之外的值和数据归算.
主要成果:
- 现象学方法保留了比常见方法更多的观察和参与者.
- 它提供了一个更真实的优先人口的代表.
- 敏感性分析证实,现象学方法不会损害数据完整性.
结论:
- 现象学方法在大数据分析中主张边缘化社区.
- 它使研究人员能够以道德的方式使用大型数据集.
- 这种方法促进了社区利益和研究中的尊重.
相关概念视频
Longitudinal Studies
108
Longitudinal studies are also widely used in other medical and social science fields. For instance, in cardiovascular research, they can monitor patients' health over decades to identify risk factors for heart disease, such as high cholesterol or smoking, and evaluate the long-term effectiveness of preventive measures. Similarly, in mental health studies, researchers might follow individuals from adolescence into adulthood to understand the development and progression of conditions like...
108
Strategies for Assessing and Addressing Confounding
79
Confounding is a critical issue in epidemiological studies, often leading to misleading conclusions about associations between exposures and outcomes. It occurs when the relationship between the exposure and the outcome is mixed with the effects of other factors that influence the outcome. Given that, addressing confounding is of high importance for drawing accurate inferences in research.
Confounding can be addressed at both the design phase of a study and through analytical methods after data...
Confounding can be addressed at both the design phase of a study and through analytical methods after data...
79
Issues And Trends In Healthcare Delivery System
5.6K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
5.6K
Longitudinal Research
11.8K
Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
11.8K
Bias in Epidemiological Studies
123
Biases can arise at various stages of research, from study design and data collection to analysis and interpretation. Recognizing and addressing these biases is essential to ensure the validity and reliability of epidemiological findings.Broadly speaking, biases in epidemiology fall into three main categories: selection bias, information bias, and confounding. A more detailed description of possible biases is:
123
Statistical Software for Data Analysis and Clinical Trials
478
Statistical software is pivotal in data analysis and clinical trials by providing tools to analyze data, draw conclusions, and make predictions. These software packages range from simple data management applications to complex analytical platforms, supporting various statistical tests, models, and simulation techniques. Their significance lies in their ability to handle vast amounts of data with precision and efficiency, enabling researchers to validate hypotheses, identify trends, and make...
478


