关于呼吸道保护的观点:在帕金森病患者中进行混合方法调查
Jordanna S Sevitz1, Nicole Rogus-Pulia2,3, Michelle S Troche1
1Laboratory for the Study of Upper Airway Dysfunction, Department of Biobehavioral Sciences, Teachers College, Columbia University, New York City, NY.
American journal of speech-language pathology
|March 5, 2025
概括
帕金森 帕金森症候群
科学领域:
- 神经学 神经学
- 语音语言病理学 语音语言病理学
背景情况:
- 呼吸道保护障碍,包括吞 (消化不良) 和咳 (咳),在帕金森病中很常见.
- 了解患者的观点对于有效,以人为中心的护理至关重要.
研究的目的:
- 通过使用混合方法的方法,研究帕金森病患者 (pwPD) 对呼吸道保护的看法.
主要方法:
- 采用了并行融合混合方法设计.
- 整合了来自SWAL-QOL和mCOPM问卷的定量数据和来自半结构面试的定性数据.
- 13名 pwPD 被从一个咳训练试验中招募.
主要成果:
- 参与者展示了对气道保护的基本知识,将其与生理学,腹筋功能,危险和PD联系起来.
- 气道保护被认为对生存,未来衰退和口服很重要.
- 感知障碍有所不同,有些人发现吞问题,有些人没有,受饮食策略和症状变化的影响.
- 心理社会影响包括负担,对衰落的恐惧和社会尬.
结论:
- 整合定量和定性数据揭示了个体患者观点的重要性.
- 针对pwPD的个性化管理计划应该与临床发现一起纳入患者的优先事项.
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