在罕见疾病方面拥有先进的护理能力. 一个快速的现实的审查
Héctor Nafría-Soria1, Isabel Salcedo-de Diego2, Pilar Serrano-Gallardo3
1Dirección de Enfermería, Hospital Universitario Puerta de Hierro Majadahonda, Majadahonda, Spain.
Enfermeria clinica
|March 5, 2025
概括
这项研究确定了用于罕见疾病护理的高级护理能力. 背景因素和机制,如病例管理和宣传,使护士能够发展专业技能,以获得更好的患者结果.
科学领域:
- 护理科学 护理科学
- 医疗保健管理的管理
- 患者倡导 患者倡导
背景情况:
- 患有罕见疾病的患者需要专门的护理护理.
- 了解高级能力对于提高护理质量至关重要.
研究的目的:
- 在罕见疾病护理中识别先进的护理能力.
- 探索影响能力发展的上下文因素和机制.
主要方法:
- 现实主义快速审查方法.
- 涉及专业人士和利益相关者的参考小组.
- 用于分析的上下文机制结果 (CMO) 配置.
主要成果:
- 在宏观,中级和微观层面开发了八种CMO配置.
- 确定的能力包括案例管理,培训,专业化,人文档和技术技能.
- 能力与医疗保健政策,协会运动和患者/家庭互动有关.
结论:
- 共同营养组织的配置解释了为罕见疾病护理发展先进的护理能力.
- 调查结果可以为开发专业护理能力配置文件提供信息.
- 在西班牙的背景下,加强对罕见病患者及其家属的医疗保健服务.
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