在严重喘中以患者为中心的结果:疲劳,睡眠,体力活动和工作
Lianne Ten Have1,2, Fleur L Meulmeester2, Kim de Jong3
1Department of Pulmonary Diseases, Medical Centre Leeuwarden, Leeuwarden, The Netherlands lianne.ten.have@mcl.nl.
概括
严重的喘严重影响患者的身体症状之外,通过疲劳,睡眠问题和生产力下降影响日常生活. 解决这些被忽视的需求对于改善患者福祉和喘管理至关重要.
科学领域:
- 肺部病理学 肺部病理学
- 患者为中心的护理
- 生活质量研究 研究 生命质量研究
背景情况:
- 严重的喘给患者带来了巨大的负担,不仅仅是呼吸道症状.
- 与疲劳,睡眠,体力活动和工作生产力相关的患者需求往往被忽视.
研究的目的:
- 审查重症喘患者关键患者需求的流行率和影响.
- 探索这些需求,喘结果和生活质量之间的关系.
- 评估对严重喘这些非呼吸方面的干预措施的潜力.
主要方法:
- 文献综述侧重于严重喘中的疲劳,睡眠障碍,身体不活动和工作生产力.
- 分析这些因素与已建立的喘指标之间的联系.
- 检查干预对患者报告结果的影响.
主要成果:
- 疲劳影响高达90%和睡眠障碍70-75%的严重喘患者,影响日常功能.
- 身体不活动既是控制不下的喘的后果,也是导致的; 身体活动干预措施显示出有希望.
- 劳动生产率下降与控制喘相关;生物疗法可能有帮助,但对其他需求的影响需要研究.
结论:
- 在严重喘中理解以患者为中心的需求存在重大差距.
- 针对疲劳,睡眠和体育活动的干预措施可能会改善整体幸福感.
- 需要对改善严重喘患者生活的综合策略进行进一步研究.
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