谁是你理想的同行导师? 一项定性研究,以确定癌症患者对数字同行支持应用程序的偏好
Loes Knaapen1, Andréa Maria Laizner1,2, Kelly Agnew1
1Opal Health Informatics Group, Cancer Research Program, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.
概括
癌症患者希望拥有共同经验和多样化的支持技能的同行导师. 确定了患者对匹配标准的偏好,以改善数字同行支持服务.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者支持 患者支持
背景情况:
- 同行支持为癌症患者提供了显著的好处.
- 有效的一对一同行支持依赖于成功的患者导师匹配.
- 人工智能 (AI) 匹配算法可以增强复杂的,基于偏好的同行匹配.
研究的目的:
- 通过利益相关者的共同设计,确定患者对同行匹配标准的偏好.
- 为了解决OpalBuddy的发展,这是Opal患者门户网站内的数字同行支持服务.
主要方法:
- 通过使用Opal应用程序招募了8名女性癌症患者.
- 进行了半结构化的个人访谈.
- 用NVivo软件进行主题分析,分析了定性数据.
主要成果:
- 关于理想的同行导师特征,出现了三个关键主题:支持水平,生活经验的相似性和导师角色支持.
- 患者希望提供实用,情感和社会管理支持的导师.
- 对导师沟通风格的偏好因患者需求而有所不同 (例如,以解决方案为中心与同情倾听者).
结论:
- 通过定性访谈确定了患者对同行导师匹配的偏好.
- 结果将指导数字同行匹配服务的开发.
- 未来的研究包括与男性患者的研究和OpalBuddy服务的试点.
相关概念视频
Cancer Survival Analysis
318
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
318
Nursing Ethical Principles II
904
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
904
Self-Help Support Groups
24
Self-help support groups are voluntary, community-based organizations that provide a platform for individuals with shared concerns to exchange support, insights, and practical strategies for coping with life challenges. Typically led by group members or paraprofessionals, these groups form a cornerstone of mental health care, especially in reaching populations that are underserved by traditional healthcare systems.
Accessibility and Cost-Effectiveness
One of the primary strengths of self-help...
Accessibility and Cost-Effectiveness
One of the primary strengths of self-help...
24
Combination Therapies and Personalized Medicine
4.8K
Combining two or more treatment methods increases the life span of cancer patients while reducing damage to vital organs or tissue from the overuse of a single treatment. Combination therapy also targets different cancer-inducing pathways, thus reducing the chances of developing resistance to treatment.
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
4.8K
Techniques of therapeutic communication I: Active Listening, Sharing Observations, Validation, and Using Touch
4.7K
The history of therapeutic communication can be traced back to Florence Nightingale, who emphasized the importance of developing trusting relationships with patients. She taught that the presence of nurses with patients results in therapeutic healing.
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
4.7K


